Gavin Jordan Blount
Received: May 26, 2016
Returned: Feb 18, 2023
Age: 6
Likes: Spiderman, school, playing with his brother and sister, dancing to Alexa, blasting his favorite songs, playing the Wii, and, most importantly, being a big brother
Gavin, 6, was the true big brother form to everyone. There was not anything in this world that he was not ready for. He loved school, playing with his brother and sister, dancing to Alexa, blasting his favorite songs, playing the Wii, and, most importantly, being a big brother. Unfortunately, he was diagnosed with a High-Grade Glioma, brain cancer, in October 2021 at the age of 5.
In a span of 6 weeks, he had four craniotomies at two separate hospitals. He soon after started radiation and was thriving. Also, during this time, we as a family had genetic testing done to find out that Gavin had CMMRD- Constitutional mismatch repair deficiency. Basically saying, it wasn’t a matter of if he was going to get cancer, but rather when he would get it. Soon after that, Gavin was placed on a clinical trial to help assist in his battle at Children’s National Hospital in Washington, D.C. In June of 2022, it was discovered that more areas of his brain were being impacted at a faster rate.
We proceeded to have another craniotomy performed in July 2022 to remove one of the tumors near his frontal lobe. From that point, it started the process of declining for Gavin. By August of 2022, he started playing youth league football. However, he was showing signs of having trouble walking as the start of his 1st grade school year approached. By September of 2022, he was completely bound to a wheelchair. Over the next 5 months, the cancer was taking away little things at a time: the ability to control his bladder and feeling in his legs and stomach area. By mid-January of 2023, Gavin was unable to feed himself; it started with his arms shaking to the point he would spill his food. So we would sit down and feed him and talk to him.
The way we explained it to him was we wanted to feed him so we could spend more time with him instead of him consistently thinking about his inability to feed himself. So that’s what we did for the better part of a month straight. We started noticing signs of Gavin taking the next transition in his journey when he slept most of the day and night away. We took him for one final doctor’s visit, which he slept through, and thanked his team for everything they did to help Superhero Gavin get better. Sadly, on Feb 18, 2023, at 10:19 pm, Gavin took his last breath with his family by his side.
Superhero Gavin Jordan Blount was a true warrior and fought a tremendous 16-month battle with pediatric cancer. He will never be forgotten.
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